Dear Nikola,

In reply to your two questions, "thedisorderchannel.com" seems to me a quaint and bizzarre expression of the human need for community, especially in the context of serious rare and poorly understood illnesses. The closest I came to this sort of thing in my ophthalmology practice were glaucoma patient "support groups" organized by the social workers of the hospital to facilitate mutual support among patients afflicted with glaucoma. I interpreted such efforts as evidence of the inability or unwillingness of physicians to empathize and communicate with their patients.

The $2150.- electronic head gear  which you brought to my attention is in the tradition of white canes and other "low vision aids" with which blind patients have been equipped for centuries to help them compensate for, or deny their visual impairment.  The utility of such devices depends a) on the nature and extent of the visual loss, and b) on the patient's resourcefulness in availing himself of their benefits. You have personal experience with diverse conventional and unconventional modalities of medical treatment.  As you know, the distinction between professional services and fraud is largely a matter of legal convention. 

I look forward to your visit this evening.

EJM